Charlie Gard's parents accuse hospital of preventing baby from dying at home

Posted July 28, 2017

University College London professor emeritus Ian Kennedy wrote an op-ed on the case of Charlie Gard, an 11-month-old child suffering from a rare and fatal genetic condition.

Speaking on the baby's behalf, lawyer Victoria Butler-Cole told the High Court he would be able go to a hospice at the end of this week.

They also said medics wanted to avoid hazards or mishaps and wanted to ensure Charlie was safe.

Francis said he envisaged Wednesday's proceedings being "the final hearing", in a case which has been going through the courts for five months.

The European Court of Human Rights and the British Courts supported the hospital's decision, saying the parent's plan was not in Charlie's best interest. Above all Great Ormond Street wants to fulfil that last wish.

A British hospital, after staging a months-long court fight against a plan by the parents of Charlie Gard to obtain him experimental treatment, continued on Tuesday to fight with the parents.

Ms Yates and Charlie's father Chris Gard had initially said they wanted 11-month-old Charlie to spend days with them at home before dying.

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But their lawyer today said that they have now accepted that he can be taken to a hospice for his last days.

Mr Justice Francis analysed the dispute at a hearing in the Family Division of the High Court on Tuesday.

"I am sensing that timing is a lot of the problem here", said Justice Francis.

Mr Armstrong said the hospital had not visited the Gards' ground floor flat.

Chris and Connie's lawyer Grant Armstrong said Charlie could be given a portable ventilator and oxygen supply.

Great Ormond Street, a renowned center for the treatment of sick children, said it has tried all it can to make it possible for Charlie to die at home, but the logistical challenges could not be overcome.

Wesley Smith at the National Review said: "Charlie's condition was degenerating".

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Hirano said there was as high as a 10 percent chance that the child's condition could be improved with treatment, a view not shared by Charlie's United Kingdom doctors who argued that travel to the US would cause the child undue suffering. She said the stumbling block was the need for invasive ventilation, with air forced into Charlie's lungs. She said the idea was not realistic.

Mr Gard and Ms Yates, who are aged in their 30s and come from Bedfont, west London, had asked Mr Justice Francis to rule that Charlie should be allowed to undergo a therapy trial in NY.

A Vatican pediatric hospital says experimental therapy "could have been an opportunity" to help Charlie Gard, but it was too late to start care for the critically ill baby.

Armstrong said the parents had dropped their legal fight for Charlie to continue to receive treatment because scans showed that the child suffered irreversible damage.

British courts and the global European Court of Human Rights had come down against the attempt to get the baby help.

They had asked Mr Justice Francis to rule their son should be allowed to undergo a trial of nucleoside therapy in NY, a move opposed by hospital medics who argued the treatment would be "futile".

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